Spending the night with Santi

Abe and I stayed at CHLA last night. We got to help bathe Santi and put him to bed. He is a great sleeper and is soothed very easily. We didn't get much sleep. It's 5am now and the surgery team will be here between 6 and 7am.

Today is his Norwood. The first of 3 planned, open heart surgeries. We know he will be in good hands but we can't help but be worried, nervous, sad, anxious, scared, overwhelmed and every other adjective that describes new parents who are about to see their newborn undergo a MAJOR operation.

We are so grateful for the time we spent with him last night. He is our little love, so perfect and tiny. Yet so strong and feisty. He's a warrior, I just wish his didn't have to go to battle so soon.