48 hours

Santi has been home for a total of 48 hours and we are all doing great.

The first night was rough. The combination of adrenaline, no sleep, figuring out how to set up all of Santi's accessories in the most functional way and then needing to leave the house by 8am Friday morning for his first pediatric check up, left Abe and I very sleepy, but we did it.

Last night was much smoother. Abe and I both napped in the afternoon which made the overnight feedings a lot better. We changed Santiago's nasal cannula during bath time. While he was without oxygen, we hooked up his pulse ox so we could monitor his sats and heart rate. Santi did so great. He was without oxygen for about an hour and his sats were perfect, 79-83 and his heart rate was perfect too. Hopefully we can wean him off oxygen within the next few weeks.

Finally photos without tubes!

 

 

Having him home is the best. He is so sweet and cute and such a good baby! We are in awe of him, his strength and his charming personality. I truly believe that he can feel the love that all of you, our friends, family and even strangers have been sending him. We couldn't have gotten this far without all of your love and prayers. THANK YOU!

Please keep it up. We need to keep him healthy this summer until his next surgery.