An Awesome Day

What can I say, we had an awesome day. 

For starters, we had our favorite nurse last night. She is so considerate of Santi. He managed to sleep peacefully  from 9pm to 6:45am, when blood draw came in. She does her job, IV meds, vitals, etc, she just has the magic touch to not disturb him and I am so grateful for that. 

I've been working with Santi on staying calm for X-Rays, and today it paid off. It's the first time, ever, he didn't scream through his X-ray. I felt so accomplished. On top of that, his X-ray was perfect and clear. 

Practicing for his X-ray 

Since Santi had zero drainage overnight and a clear X-ray ​they pulled his tube this morning. Yay! Within 20 minutes of losing that tube he was more of himself than I've seen in a month. He was SO HAPPY. He just wanted to walk the halls and play all day. 

Playroom!

Then, we were treated to another surprise. Actress Malin Akerman (The Heartbreak Kid, 27 Dresses) was visiting our unit, bringing toys to each child. She was so sweet and beautiful and surprisingly tall.  (I'm 5'9 and she makes me look petite in this photo).  She gave Santi a HUGE box of crayons and a cool coloring book. Santi and I were both thrilled. By the way, I'm glad I actually showered and got dressed today!

The tube is out and we're off oxygen​, so if our X-ray looks good tomorrow then we are one foot out the door.