CHLA - day 8

I was holding off telling you this because I just couldn't believe it was true. But it is true, so now I'll tell you.

We have been sentenced to 14 more days at CHLA. (Seriously, most celebrities spend less time in jail after committing a crime!) The only way to effectively squash this infection is through IV antibiotics. In order for Santi to get the IV antibiotics every 8 hours, around the clock, he has to stay in the hospital. And if he stays, I stay.

I'm a little devastated and a little ambivalent. It's so hard seeing your baby in the hospital, but I'm happy to be here under "good" circumstances. I realize with his condition we could be in the hospital with something much more serious at any given moment.

We are still in CTICU. Santi is having some trouble weaning down his oxygen. He is down to 2 liters, but we'd like him to have stable sats on less oxygen, like .5 liter. But hey, we have two more weeks to work on that...there's always a bright side.

Our sweet Santi is pretty much back to his charming little self. I've put my foot down with night time interruptions, well, and interruptions in general, so that we can create a familiar, structured environment. I'm not very popular with the nurses, but who cares?! I'm not here to make friends, I'm here to protect my son.

We are his advocates, his voice and his protectors. This experience has made us truly feel like parents.