48 hours post-glenn

Santi is doing fantastic and moving in the right direction.

Yesterday they removed his breathing tube. He is currently on half a liter of oxygen and still weaning. His chest tubes and catheter were also removed. He started eating yesterday, yay! He's eating 3-4 ounces, every 4-5 hours. It's not as much or as frequent as before, mainly because he is still on pain meds and spends most of his time sleeping. However, he is no longer on the heavy duty IV drugs, morphine or atavan. They are only giving him ibuprofen and Tylenol with codeine for pain and it seems to be all he needs. He is on an IV blood pressure medicine and were hoping he is off of it by tomorrow.

One of the biggest issues post-Glenn babies have are headaches. They are not used to having so much oxygenated blood flow to the brain. It creates pressure and it hurts. His head is even still a little swollen from the pressure. We will continue to give him Tylenol at home to manage that pain which could last for a few weeks.

We were moved to a shared room yesterday which we were not thrilled about. But only the most stable kids can share a room, so I guess it's a good thing to be considered strong and stable. The worst part is that the parent area of the room is super tiny. I'm getting claustrophobic!