Surgery is underway

It was a long night, followed by a rough morning. In preparation for surgery, Santi was NPO since midnight, meaning he couldn't have anything by mouth. Naturally, he was not thrilled about being denied water and fruit for breakfast. We did our best to keep him distracted this morning while waiting to hear what time he'd go to the OR. He loves watching daddy draw on the whiteboard!

Luckily, they came for him around 10am. So his suffering was not prolonged. 

This morning has been the hardest of all the entire Fontan stay. We were blindsided by this procedure and had little time to prepare. Santi was thirsty, tired and uncomfortable. He kept screaming "mommy, mommy," pleading for me to help him. To protect him. To make everyone go away. He calms down when I snuggle my cheek up to his and shield his body with mine. "Hug,  HUG!" He says through tears.  It brakes me to pieces. 

We are his parents. We should be able to protect him and keeping from suffering. How do we do that when we are faced with the necessary? 

They took him at 10:30. Each time it gets harder and today was no exception. We hope to hear something soon.  

We appreciate the endless love and prayers​. We feel it. Santi does too.